How I Beat Morgellons Disease

How I Beat Morgellons Disease

How I Beat Morgellons Disease: Megan's Miracle

Morgellons is a nightmare. The doctors are basically useless when it comes to this disease. It’s really quite incredible how isolating living with these parasites can be. I never imagined in my wildest dreams it was possible to suffer this badly. Personally, if I had not figured out how to get rid of this I would’ve committed suicide. 

Because let’s face it- living with this just simply, Isn’t living! I would’ve followed in my dad's footsteps. After watching what he went through and all the awful things that Morgellons had ripped away from him. From his intelligence to his ability to enjoy the little things in life, his body… and eventually his organs, his ability to swallow, his independence, and finally, his legs. It severely interfered with his quality of life, causing not only physical but also mental health issues.

This is my story of how I beat Morgellons Disease.

 

What is Morgellons disease?

Morgellons Disease is a poorly misunderstood condition that is almost always dismissed or misdiagnosed by health care professionals as Delusions of parasitosis, a delusional infestation, Autoimmune conditions, and Mental Health disorders. Incorrect diagnoses from physical examinations lead to improper and un-effective treatments with antipsychotic drugs and antibiotics.

It's symptoms are debilitating in many ways and the end result is long term, chronic pain and serious health complications from years of living with MD without treatment. The symptoms of Morgellons Disease range from minor to severe and every symptom changes over time, as the disease progresses. The most reported symptoms of this skin condition includes muscle pain, memory loss, digital dermatitis, abnormal and consistent shedding of dead skin cells, mental illness, foreign material imbedded in or protruding from the skin, unexplained dermopathy, secondary illnesses like Lyme disease (spirochetal infection with borrelia burgdorferi), urinary incontinence, stinging/burning sensations on the skin, vision changes and abnormalities, movement/crawling/biting sensations on or under the skin, hair loss, and so much more.

To learn more about all of the symptoms associated with Morgellons visit our blog post here: Symptoms of Morgellons Disease.

MD patients often report that more than one family member is also afflicted with the symptoms of this disease and marked locations on the map show a correlation between infected individuals living within a 10 mile radius of one another, in each of the 50 US states, suggesting an infectious etiology.

But, is Morgellons disease contagious? Learn more in our blog post here.

 

a young woman and an older gentleman hugging

How I Beat Morgellons Disease: The Beginning of My Story

It broke me. More than you can imagine. My father means the world to me and I am his everything. I must confessWhen daddy decided it was just too much to handle & told me he was going to leave me, I didn’t argue. I didn’t fight him. I didn’t blame him. In fact, I understood.

I had only been infected with Morgellons Disease symptoms for a short amount of time…. But, I already understood more than you might think. When he took his last breath with his hand in my hand, I felt relief. Relief in knowing my daddy never had to suffer another loss or bear the pain of another day.  

a note typed on a typewriter

After that awful loss, that’s when my desire to get rid of this disease tripled. This experience with my daddy made me realize I had 2 options: 

  1. Give up

  2. Find the cure my damn self 

a womens back tattoo with a cancer survivor ribbon and a blue butterfly

So, being the fighter that I am… I went with option 2. This is how I beat Morgellons Disease.

I quickly went to work using every ounce of my energy towards beating this. Those days when it just seemed pointless and all I wanted to do was give up… I thought of daddy. It kept me going because I know how important it is to him that I am happy. On the days I couldn’t do it for myself, I did it for him.

a young woman with long hair smiling really big in the sunlight

This is me before the symptoms of Morgellons set in. You might not see it here: I had already endured so much trauma in my life. I thought I had seen it all.

I had spent years of my childhood in excruciating pain that made me vomit up to several times a day. It took real strength for me to play with the other kids most days. I had gone to the doctor for excruciating headaches so many times. They tried everything. From antibiotics to pain medicine and more. Unfortunately, nothing helped. It wasn’t until my brain tumor grew to the size of a large grapefruit, that someone found it in my MRI scan.

Several opinions & doctors later, laying in the hospital bed at 13 years old: I remember hearing whispers through the crack of the door. Doctors whispering about me. I remember pushing myself forward to sit up and lean toward the door. So I could hear more. And that’s when I saw my mom drop to her knees in the middle of the hallway. 

My mom's pain was so deep that I barely interpreted what the doctor had just told her. It wasn’t until a few minutes later… I finally realized why my mom had stopped breathing and fallen to the floor. The doctors had just told her that there was nothing they could do for me. None of them were willing to perform the brain surgeries needed to save me- it was too risky. None of the doctors wanted the death of a young girl falling on them. 

They told my mom I had about 2 weeks to live. My tumor had grown too large over the years. Because nobody found anything and all of my tests were normal. Sound familiar? 

Yes, it's true. Truth be told, there are a lot of people who suffer from dismissal and neglect from medical professionals. It is not just Morgellons disease sufferers. There are many multiple, rare health problems that are poorly understood or misdiagnosed. You are not alone and I think it's important you understand this. There are hundreds of thousands of people in every country, all around the world who have been neglected, just like you. Unfortunately, a lot of health symptoms are just hard to understand, unless you have been through it yourself. So try not to blame your doctors and do your best to just find a good medical doctor that believes you and is willing to listen. This can be a blessing in itself.

The next thing I remember is talking to my daddy on the phone. He said to just hold on and wait for him to get there. "I'm on my way baby," he said. However, daddy never made it up to my hospital room. Nobody would tell me where he was. I struggled to lift myself out of bed but couldn't gain enough balance to stand up. I remember wanting to look for him- I knew he was nearby. 

It wasn't until a few hours later that my mom told me what had happened. Daddy had been so upset when he learned the news about me, that as soon as he walked through those double doors at Children's Hospital, in Detroit Michigan... he dropped to the floor and had a massive heart attack. Interesting enough, if he had not walked through those doors at that exact moment... he would've died right then. Daddy had been rushed into emergency surgery to save his life. I learned he was now recovering down the hall and he would be alright. 

My mom and my sister quickly got to work that evening, after everything had died down a bit. Researching for countless hours and calling doctors... searching for the answers to save my life. Until finally, I saw Dr. Holly Gilmore Hill, the top brain surgeon in the United States back then. She said she could save me. She would perform both brain surgeries I so desperately needed.

After my 2 brain surgeries and barely making it out alive, I had to learn how to balance and walk again. Before returning back to 8th grade in a new school...completely balled.

I remember thinking having no hair in middle school was almost worse than the actual brain surgeries and the tumor. I really hated it. So when I shaved my head to help lower my symptoms from Morgellons Disease, I was already too familiar with the experience of having no hair. 

 

Where I Found the Drive to Make the First Morgellons Disease Treatment that Works

Despite being that 1 in a million to experience this kind of trauma before adulthood, I came out of that trauma more full of life than ever before. 

Unfortunately, Shortly after things settled down I began developing severe back pain and I became incapable of bending. Breathing was difficult. I felt crooked and out of place too. Turns out, I had developed scoliosis. My spine was moved out of place and twisted into the shape of the letter "S." 

I spent a year in physical therapy doing unbelievably painful exercises and daily stretching.. forcing my spine back into place. The last thing I wanted or my mother would allow, is spinal surgery. Because that surgery could leave me paralyzed.  

It wasn’t long after that my daddy began to slowly disappear, piece by piece. It all started with a few non-healing lesions, gang green, and eventually stomach pains that led to a total blockage in his intestines. He had to get a section of his bowels removed. And ended up stuck with a colostomy bag. 

An older gentleman and a young woman looking at each other with lots of loveDaddy was never the same after that. He became frail and fragile. He was weak, and sore from head to toe. They said the surgery went great but I knew something wasn’t right. He quickly became so skinny that I often wondered if comparing him to a toothpick was an odd idea. He looked 20+ years older in one year. 

That was only the beginning of what was to come for me. This is the beginning of my story and how I beat Morgellons disease.

a females eye and half her face wrapped in morgellons webbing and a flower border surrounding the border

Despite it all, through my experiences, I became the light in the darkness- a piece of hope when all is lost. Always the one smiling through the worst of times and picking others up when they needed it most. 

Until Morgellons stole my light. 

 

Living with Morgellons Disease

The terrors and traumatizing symptoms I experienced changed me forever. I had terrifying skin rashes that would itch or burn like mad more often than not. For the first several years, I didn't experience any non-healing lesions though. That came later on. I developed my first non-healing lesion in the center of my face that didn't go away for nearly 3 years.

morgellons disease skin rash

Eventually, MD cost me my ability to swallow, breathe, and singLosing my ability to sing was devastating to me. Honestly, the correct statement is this: losing my singing voice was worse than a death sentence. As a kid, I was running around singing before I figured out how to talk. 

Next, my esophagus collapsed from Morgellons. And, I had to have surgery to pry it back open. There was no cause found.

swollen foot from morgellons disease

The same year I lost my singing voice… my ankles and feet became painfully swollen and numb. It happened out of nowhere and for no reason. I mean, you would not believe how bad it got. My feet and hands were often completely numb with intense pain coursing through my ankles and wrists as they tingled.

After a year of the neuropathy-like symptoms, my feet turned dark blue & purple in color on/off throughout the day. This is an indication that my extremities were not getting enough blood flow or oxygen to the tissues in these areas. Most days, it caused me more pain than I could tolerate. It was just like daddy's feet. It was equivalent to neuropathy pain, despite my young age. However, they kept telling me that nothing was wrong and all of my tests were normal.

By this time, I felt like I was 105 years old, on the good days, at the young age of 28. Every joint and muscle in my body felt ripped and shredded into pieces.

My own reflection in the mirror, made me so sick that on several occasions, I actually had vomited. I did not recognize my face or any part of my own body anymore- I didn't look normal.

Looking in the mirror and not being able to recognize yourself can cause some serious mental disruptions, believe it or not. I do believe I developed a bit of PTSD from the trauma later on.

 

Breathing abnormalities and Low Oxygen from MD

Shortly after the surgery I developed twelve new, extreme allergies as a secondary complication to MD. I spent 6 months begging and pleading for help from the doctors because I couldn't eat, drink anything, or even go outside most days, without experiencing extreme swelling everywhere in my body. I felt like a fish out of water constantly and the doctors just kept writing me off as crazy. Until finally, one of my doctors decided to give me a blood test for new allergies. I came back positive for a severe allergy to all 4 types of pollen, mold, cat dander, dog dander, white oak, wheat, barley, and oats.

By the time I finally had help for the allergies I had developed, I had an IGE level above 5000! I could've died. It was a terrible experience to be shoved aside every time I begged for help, as I gasped for every breath. But, eventually, I was able to effectively eradicate my mold toxicities and I learned how to keep my exposure to my known allergens to a minimum.

From my experience as a Morgellons coach, I noticed that many individuals with Morgellons also have or had a terrifying experience with mold allergies and toxic mold syndrome. So, I wrote down the diet I used to completely eradicate mold from my body in 90 days. You can find my Low Mold Diet here.

 

Total Vision Loss from Morgellons

The year before that, when I first developed symptoms of skin parasites was nothing short of tragic either. I had total vision loss from the organisms diving into my eyes. Occasionally, I’d get some eyesight back for a short period of time. Only to fall asleep that night.. and wake up completely blind again.

What made it even worse was that no doctor could help me or reverse any of the damage. I had non-healing lesions, scratches, and eventually scarring of the cornea from Morgellons organisms and the webbing they encased my eyes with.

In fact, after living in severe pain and in total darkness for over 10 months, the doctors began to tell me I would be blind for the rest of my life. 

 

My First Discovery Towards a Cure for Morgellons Disease

One day, I stumbled upon some soap that just so happened to eradicate my eye problems for good. And, pretty quickly too. I washed my face with this goat milk melt-and-pour soup I found while rummaging through my closet drawers, using my hands to feel what was inside.

I had no idea why that soap or how it worked back then, but it did. I later learned that it was the goat milk that gave me full vision back in one eye and a little bit in the other eye, for the first time in almost a year, in just one wash. It was nothing short of magical.

 

Richard Kuhn's Get Your Life Back Protocol

It was after gaining some of my eyesight back that I found some relief in a support group and a protocol designed to give you your life back. After completing Richard Kuhn’s protocol and feeling a little better, I decided to become one of his coaches. I needed to have more connections with others who had this disease. I needed to learn more and find more answers. This seemed like the best way to do it. 

Shortly after becoming a coach, I was using his debriding soap to scrub my scalp and as I rinsed, I ended up going completely blind from the MD organisms getting rinsed into my eyes, AGAIN. I am not sure which part was more terrifying: the thought that I might not ever be able to see again… or the pain it caused me in my eyes every day. The pain was beyond anything you could ever imagine.

It was in that moment when I woke up… I decided Richards protocol just wasn’t going to cut it for me. I still couldn’t live the life I wanted to live- I certainly wasn’t healthy either. I needed a better plan. 

 

Goat Milk Soap for Morgellons Sufferers

I stumbled upon an idea. I think I figured out how I was able to open my eyes back up the first time around- It was the milk in that soap that effortlessly and painlessly removed the film from eyes. So, I asked my boyfriend Michael to bring home some melt-and-pour milk soap from the craft store. And, help me make some as soon as he got home from work. 

Again, just like magic- poof! It wasn't longer than 10 seconds after using that goat milk soap to wash my face… that all the Morgellons just fell right out of my eyes. Thank god! Even better, I had finally found an answer that would lead to something more down the road.

After spending so much time thinking I might be blind forever, I had to ponder more about that soap. Why did it work? How can I make something even better?

That melt and pour milk soap was far from ideal. It caused some pretty crazy side effects with continued use. In fact, the following week, I woke up with a huge painful swollen lip and mouth.

a women with no hair wearing a cap on her head with a massive swollen bottom lip

So, I began my journey to finding more of the answers our community so desperately needed. I researched countless hours just researching and learning everything I could about milk. Trying to figure out what organism would be effected by it and how it worked. With full vision and daily use of my melt & pour milk soap, I got down to business. I went on a search to find other ingredients that worked as well as the milk in that soap.

morgellons disease ingredient testing by megans miracle

 

How I Beat Morgellons Disease

I continued coaching for Richard for quite some time. It was helpful because I was able to stay in touch with many sufferers of MD. I began keeping medical records of those I coached. I was able to analyze commonalities and differences of hundreds of Morgies (Morgies is short for people with Morgellons Disease. You may hear me mention this word a lot in future posts or when you talk to me.)

I even made timelines with various important events like surgeries or the onset of other illnesses, for more than two hundred people with Morgellons, to study and learn which symptoms were connected. I spent every waking moment experimenting and building new ideas and exploring different treatment options. Using everything I learned to make life with Morgellons better tomorrow.

Eventually, I was able to figure out what actually works against Morgellons. And, continues to work for everyone. Of course, even knowing everything that works, just is not enough. Because EVERYTHING quit working eventually. Or it was not strong enough to do more than maintain. I had to come up with a solid plan to prevent that from happening. 

I made a list of every cure ingredient that proved effective on me and those I was coaching. I used these ingredients to make potent soaps using each ingredient at the strongest percentage I could add to each recipe. Then, I labeled each soap #1-25 so that nobody could fill in their answer sheets based on biased opinions or otherwise. I wrote up a set of questions designed to test how well each soap worked for individuals over time. Creating blind studies for more accurate and consistent results.

I did many trials and experiments using similar strategies like this for 6 months. Tracking levels of effectiveness for each of the “cure ingredients” until I had it down to a science. Using unique number systems and progress photos from each person.  

I ran a few blind studies with willing participants to test various subtypes and effects of ingredients with similar chemical structures after that too. 

word document with questions for study participants 

 

The Perfect Soap for Morgellons

Based on what I had learned.. it seemed the best way to combine everything that works.. was into a soap. Something we could easily rinse away. Plus, it was the cheapest option I could think of. 

Considering I had lost over $10,000 to treatments/remedies/etc that in the end.. didn’t help me AT ALl... I knew I had to create something affordable. Something everyone could afford. It also had to be a simple task. Something everyone could manage to do. Soap seemed to fit the position. So, I spent the next several months researching, learning, mixing, cooking, and experimenting with the soap-making process. Many chemical burns, inhaled powders, explosions, broken mixers, and overheated crockpots later- I finally got it right! 

A soap composed of every “cure ingredient” to match my list of effectiveness. Over 100 prime ingredients guaranteed to be the best of the best in the fight against MD.

fluffy whipped soap with blue and purple swirled colors and a spoon filled with salt crystals

Despite all this hard work, I was extremely doubtful that it would work well enough to give me my life back. I can’t lie. Everything else had only let me down. BUT to my surprise, 3-4 months later- I felt normal again! I even recognized my own reflection in the mirror. Imagine that. 

a girl with a hair net on her head and half of a morgellons face and half a pretty face

I could not believe it.. 80% of my symptoms-COMPLETELY GONE, from my soap! Talk about a shock! And the difference in my appearance was nothing shy of incredible. From here, I immediately sent out free sample soaps to over 40 people I was coaching. Express delivery. I mean I couldn’t wait to give them instant relief- a true miracle. I couldn't wait to share how I beat Morgellons disease.

 

soap bars with swirls of blue pink and white and oats on the table surface

How I Beat Morgellons Disease: My First Morgellons Disease Treatment

And, Despite my doubts.. My soaps have continued to work for everyone, every time. My miracle: Megan’s Miracle. I did it. 

Of course, I didn’t stop there. I knew I could figure out more. Find the rest of the answers I needed. I mean, with NO MORE brain fog I connected the dots pretty easily from here on out. Plus, with all of these Morgies getting so much better with the continued use of my soaps- I gained my confidence back. The confidence I needed to build greater things. Not to mention, I needed 100% of my life back, not 80%. No way did I come this far to live out the rest of my life cocooned alive. Waiting in fear to go blind in my sleep again. Nope.  

So, I taught myself chemistry needed to make simple, daily life necessities that I already use anyway- but, filled with the perfect combination of the most effective ingredients. I was able to come up with perfect formulations for a variety of topical remedies including conditioners, moisturizers, bath salts & more. All of which I still use every day, as a means of prevention. 

This was my Morgellons disease treatment that I designed and the start of how I beat Morgellons disease.

A collage of different types of soaps and cleansers

How I Beat Morgellons Disease: with help from my doctor

Over time, as I studied everyone’s progress and setbacks with my soap(now called Megan’s Miracle Soap)I was able to develop the most effective methods for use and figure out how often showering was necessary to maintain progress. As I continued to analyze everyone I coached: bits & pieces of the unknown began to come together. The answers to all of my questions began to fall into place.

That's when I began developing a full protocol through trial & error and more studies & experiments. Through the results of my studies, I was able to design a diet protocol, supplement regimen, and step-by-step usage instructions for getting the most out of each day and every use of my products. 

Shockingly enough, after my doctor saw how well I was doing, he developed a desire to help improve my protocol and my products too. I never thought I'd see the day. I mean I had been seeing him since before I was infected with Morgs. For many years he was my go-to doctor. And, despite giving me every prescription medication and legal treatment he could, I never suspected he could or that he would do more after all of that: Considering the legalities surrounding Morgellons Disease, there was only so much he could do to help. But boy, am I glad he did! 

Every couple of weeks I would make an appointment to see my doctor: and, he would throw a clue or two my way to help me finish beating Morgellons. He would say things like “Hi Megan! Nice to see you today. I have bees buzzing behind my ears! Do you know what I can do about it?” or he’d slip me a piece of paper as I was walking out the door that said, “It starts with an S. Lives in the upper peninsula & is a flower, herb, or spice.” After months of searching and trying different remedies, I finally found the cure for my Morgellons symptoms of intense itching and skin sores. It was a long and difficult journey, but I was determined to find the cure myself.

It took me some time to figure out his riddles.. but eventually, I did. The "bees behind the ears riddle" took me months of guessing and discussing with other sufferers, before I figured out what he was getting at. As more and more people started sending me photos of the back of their ears... I began to notice something we all had in common. A connection that literally holds the back of the ears to the head. It's a connection that is usually covered by biofilm or superficial skin. A strange abnormality that with continued use of my soap, was being exposed behind the ears of more and more of those I coached. The answer to the mystery and the cure to Morgellons Disease. Finally! This was HUGE! 

You can learn more about the main connection, behind the ears, in my blog post here: Behind the ears. It's here, where you'll find the most important aspect to how I beat Morgellons disease.

main connection behind a womans ear

Behind the Ears Sessions

This is a key part of how I beat Morgellons disease.

As time went on, I developed my own little tricks & ways of breaking the connections behind the ear open faster. With the help of those I coach, I was able to figure out how to unravel the entire cocoon that holds Morgellons on the body, inside and out. WHOOOHOOO!!! 

You can learn how to get started on your Behind the Ears Sessions in my protocol: Megan's Miracle Recovery Protocol for Morgellons Disease.

Don't worry, It's not as far-fetched as it sounds. I'll walk you through step-by-step to help you complete each task in your recovery. You can learn how to get started on your Behind the Ears Sessions in my protocol: Megan's Miracle Recovery Protocol for Morgellons Disease right now.

I even have free online Master Courses that you can take that will walk you through everything you'll need to know to make a full recovery. Plus, you'll earn reward points (up to $3000) that can be used to help you afford your purchases from my shop and website, at MegansMiracleStudio.com- just for completing your quiz's and assignments as you go.) I want you to succeed and I have no problem helping those with financial hardships get through protocol, as long as I know you have all the knowledge & tools necessary for success.

Get started with my online education courses for defeating Morgellons on my website, MegansMiracle.Thinkific.com. Get started in course 1 and progress to course 2, 3, 4, etc. You'll learn everything I learned, and how I beat Morgellons disease in my courses.

To this day, I am still involved with everyone who joins my protocol: analyzing and striving to design a protocol better than yesterday. Building upon what I know to help all sufferers of Morgellons get their life back. I am also getting started building a personalized protocol with tasks very similar to my MD protocol, for sufferers of other health conditions that have asked for my help: including, Parkinson's disease, Arthritis, Celiac disease, Lyme disease, and other related health problems like Autoimmune diseases.

 

How I Beat Morgellons Disease: Megan's Miracle Recovery Protocol

Megan's Miracle Recovery Protocol is custom made just for you to teach you how I beat Morgellons disease and how you can too. I even have printable material lists with estimated monthly costs of each item, that you'll need to complete protocol. Plus, easy to use protocol task lists that you can use to make sure you don't forget to complete all of your important daily & weekly tasks. Use the links below to download your material lists, protocol task lists, and injection schedules for each of the 5 stages in recovery below:

Pre-protocol Checklist

Stage 1

Stage 2

Stage 3

Stage 4

Stage 5

 

I want to teach everyone how I beat Morgellons Disease. I am determined to give everyone with Morgellons a solid chance at living. I strive to give all of you a bit of what we all deserved from the beginning:

- someone who understands & listens 

- someone who cares 

- someone to give you hope  

- someone who completely believes you 

- someone to teach you how to fight your enemy

- someone to answer your questions

- someone other than you who cares if you can LIVE your life or not

 

Check out everything I made just for you, so I can teach you how to beat Morgellons disease.

Megan's Miracle Studio on Etsy

Megan’s Miracle Recovery Protocol 

Megan's online Master Courses for defeating MD

My Blog, Morgellons: The Truth Exposed

Megan's Miracle Apitherapy Supplements

Megan's Miracle Bee Venom Therapy Kits

Megan's Miracle Bee Venom Products

Megan's Miracle Apitherapy Cleansers featuring Honeybee venom

Megan's Miracle Moisturizers & Conditioners

 

How I Beat Morgellons Disease: Before & After Photos

Here are some more crazy before/after photos for how I beat Morgellons Disease too.

And, This photo was taken 6 months before I became a coach for Richard Kuhns & before I started making soap.

Before Photo

a girl infected with morgellons disease wearing a hoodie and glasses

 

And a photo of me after using my soap for a few months. 

After Photo

results from a treatment soap with a girls face

How I Beat Morgellons Disease: Before & After

From here.. it gets oh so much better. The things I’ve discovered since ridding myself of brain fog and memory lapses, is nothing short of incredible. 

before during and after photo of a girl going through morgellons treatments: a side view

Utilizing the devices on my protocol and disconnecting everything behind my ears did my body good. Just to show you how dramatic the changes were in Stage 5 for me.. I have to show you more photos. 

a photo of a girl before and after with treatments for morgellons

___

The changes in my back were nothing short of extraordinary. Here is what my back looked like before my soap: 

Before: EW

a before photo of a girls back with morgellons disease

AFTER

a before during and after photo of a girls skin from behind

 

Please do not hesitate to reach out to me if you have any questions, need help, or if you need someone to talk to. Seriously. Thats what I am here for. And, that's why I have a buddy system in place. You don't have to do things alone. Just use the Chat With Us button located in the bottom-right of your screen or visit the contact page on my website for my personal contact information.

 

a photo of a woman smiling next to a marker board with a slogan written on it in cursive for megans miracle

 

 

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17 comments

You’re such an inspiration Megan. A beacon of hope. Please, please, please tell me you can ship to Canada??

Holly

I would love your help as I am covered but I’m on Tpn fed by a machine because iv got intestinal failure with short bowel syndrome so I’m fed with Tpn lipid bags and glucose bags of 2 litres for 6 days a week they go to my aota artery and fed through the vein due to my stomach and intestines failing and also got a blockage iv also got 2 fistulas which has got bags on plus ileostomy bag which is high output so I lose more then I take in so my kidneys do not work properly even when I put hartmanns up and magnesium as I end up low on a lot of vitamins and minerals also, the last 11 year iv spent 6 in hospital and I have had two cardiac arrests bled out as also got a platelet disorder they are deformed, a stroke and also meningitis so I don’t know if I will be allowed to use the soap iv tried oil free things to get clean with, but I have to do my Tpn aseptic and when them things fall on them and the gloves don’t come up far enough up my arms as they a mess also, my left breast covered but not deep but like I said on page that could be the silicone implants they may not like them but iv got them from head to toe and also I have 2 small cups of coffee a day as only allowed 500ml of oral fluids a day and you can see them in the bottom of my cup, I clean my eyes and nose with baby shampoo as rinse them I use an egg cup for my eyes and also use a syringe inside my ears with warm water every day to rinse them out also, but I shave everywhere apart from my hair, but iv got a lot of illnesses and have lots of meds iv tried suicide twice it was the second time I did it when they told myself that I wasn’t absorbing hardly anything as they said I had taking enough stuff to kill 3, people so I was lucky I don’t feel lucky as I’m in extreme pain off other illnesses through doctor’s negligence where they left me 18 month with bowel leaking inside me so it had infected my insides badly if my gp and surgeon hadn’t kept me on high dose antibiotics I wouldn’t be here, but it had rotted 1/3 of spine, right hip, liver, bladder, kidneys and bowel the surgeon who ended up doing op as had to go to different hospital said I wouldn’t of seen Xmas this was September, iv ended up with my full stomach been open and having a living flap where they took the large muscle blood supply and everything in one go from top of right kneecap to groin fed it under so came out of bikini line, but iv had 18 major surgeries in last 11 year but a young doctor took my bloods one day through my Hickman line and I ended up nearly dying 2 days later he had giving me a Candida infection which had gone to my bloodstream but effected my heart and eyes so it’s just had me wondering where these have come from but the hospital was dirty I cleaned my own room was cleanest on ward, but these things I’m covered I’m going in bath or shower up to 8 times a day with bottles of bleach but everywhere I go I get told delusional parasites but it was a gastrointestinal doctor who’s dirty ward I was on diagnosed that but didn’t do any tests now when go anywhere they see that In capital letters so then they go with him, there’s only my gp who listens, I’m very for the very long essay but I’m terminal anyway but got grandchildren who I would desperately love to spend time with but I won’t because I don’t want to pass this on to them even though the professionals say I can’t but they say they in my head so what am I supposed to do, it’s a lonely place I live on my own and it’s just getting harder, iv started missing my iv meds as I know that I will probably take bio connection off and then just unclamp my line and then I will just bleed out and probably just go to sleep, but I don’t want my grandaughter finding me dead because I love her so much and she’s only 7, sorry about the essay just wanted you to know the other things going on with me just in case you can’t help and don’t want to pull out loads of money as spend a fortune now on it on stuff that sometimes helps a little but would really appreciate your help

Kind Regards
Dawn Goundry

Kind regards

Dawn Goundry

Hi Ginger! I’m happy you reached out. I sent you a message via sms. Just message me back whenever you have time. I’ll be here.

Megan Mick

Could you please contact me I could use some help
321-279-5693

Ginger Spinelli

Absolutely kim. I cannot imagine anything worse than having to live with Morgellons. It’s hell on earth.

But we’ll get you through this. Stay Strong and keep fighting baby. There is a light at the end of the tunnel. I’m waiting for you there.

Megan Mick

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